SOCIAL MEDIA

Going On The Mini Pill For My Chronic Pain/Suspected Endometriosis: 6 Months On

Thursday, 21 November 2019


I can't believe as I'm writing this it's been over 6 months since I was basically forced to go on the mini pill for my chronic pain/suspected endometriosis. Like where has that time gone? Anyway I wrote this post all about my experience so far which I think I wrote after being on it for around 3 months. However there's been some weird things going on since then that I just wanted to talk about as I know some people have been following blog for my (suspected) endometriosis journey and any posts I write about it. Also when I say suspected I mean pretty certain btw. It's the doctors who are "blind" to the fact that I have the majority of the symptoms and have done for years. I honestly think my chronic pain kicked off last year because the endometriosis has gotten worse over the years without being detected and now it's built up inside of me and it's just inflamed and angry all of the time. The only problem is now is that any doctor I see is basically playing god with my body when things could be seriously messed up inside of me, to the point that I might not be able to have kids if I want them in the future, which I'm pretty sure I do. Also because I'm plus size, I constantly get fat shamed during every doctor/hospital visit too. 

Anyway I've had some weird things going on since my last blog post about going on Cerazette and I just thought I'd basically brain dump everything here for both myself to look back on and also anyone else who is having the same or similar symptoms (whether you have endo or not). 


First up is cramps... I've been getting monthly cramps minus a period which is super annoying. My actual chronic pelvic pain still isn't as bad as it was when I wasn't on the pill which again, is another obvious symptom that the doctors should pick up on. The pill is helping my pelvic pain which pretty much says my pain is gynaecological related and not just sudden onset "chronic pain". I've also had scans and blood tests in the past year which have ruled out any other concerns including fibroids, PCOS and anything more sinister. So it means everything is pointing to endometriosis again. For the cramps I've been getting I've been using a mixture of either CBD products, BeYou Patches and strong paracetamol (I can't take NSAIDS so yep, fun for me).


I also got a period. Yep and guess when it arrived? On Friday the 13th and also during a full moon. That is some witchcrafty, powerful shit, right? I was just like oh my god and then I shouted downstairs to my mum to tell her hahaha. I literally felt like I was getting my very first period all over again. I've definitely been taking white bedding for granted over the past 6 months. The period itself in terms of the flow wasn't too bad, it was light-moderate and nowhere near as heavy as my usual periods and I didn't really get any clots like I would normally (sorry tmi but just being real). I just whacked my trusty ModiBodi on and I was fine. It was the pain that was the issue, it wasn't as bad as they usually are during my "natural period" but it was still up there on the pain scale and it was setting off my pelvic pain even more than usual. So yeah, it's safe to say it was not a good 5 days. I just hope I only get one every 6 months or so because I can just about handle that. 


Something else which is really weird and I don't know if it's just me finally growing up and realising that "my type" always end up turning out to be arseholes or if it's the pill affecting me but my "taste" in men has changed a lot. Which I've got to admit is very weird because my type has been very samey for years and then all of a sudden it's changed a lot and it kind of coincides with when I started on the mini pill. So I do think it's pill related in some sense because of the hormonal changes. I've also read articles about it prior to going on the pill about people being in long-term relationships or even married and then not being attracted to their other half all of a sudden after going on the pill or changing pills. It's all a bit weird and scary really, isn't it?


I've also noticed that some days (usually in the middle of my pack) I'll get really intense cravings for the most random foods, usually things I can't eat because they set my pain off too. So yeah, ngl that's annoying.

Overall I do think the mini pill I'm on (Cerazette) helps with my daily pelvic pain and it's obviously a plus that it's almost stopped my periods too. I still have pain every single day with my pelvic pain and that general area really but it's not as intense as it was. I think if the pain sprung on an "normal" person who doesn't have pain day-to-day, they'd probably go to A&E or at least to the doctors but because I'm used to the day-to-day pain, it doesn't affect me that much. Also I know it can be a heck of a lot worse to the point I can't walk, bend down or stand up straight because of the crippling pain. 

I don't have really bad flare ups of pain every single day like I was last year when it really started to kick off but I would say I get at least a few per week. The pain I get still drastically affects my day-to-day life and I can't do things that I used to before I got ill and even on my lesser pain days I have the constant fear of flaring so if the fear takes over I tend to back out of any sort of loose plans I make.

I do want to continue to take the mini pill and I've got such bad anxiety about my upcoming doctors later this month because I'm so worried my doctor will try and randomly take me off it because if she does then I don't think I can cope with the pain I was having every single day last year.

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1 comment:

  1. I hope for your sake that you get to stay on the mini pill if your symptoms have slightly improved on it! It's horrific you have to go through this day to day x

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